General
1 Year post Kidney Tx
April 5, 2026
in General
Beautiful Post Transplant Buddies, what is one thing after transplant that still bothers you or that you are faced with post transplant irrespective of the time, i am 1 year and still not able to properly adjust to life, idk how much more it will take, work, medications, this continous mental confusement and scariness, how do you all deal with it,
for some reason i have been trying to put all this questions into something i am just trying to figure out, would love if you can provide opinions and feelings here.
1 - 3 of 3 Replies
Transplant life gets easier. At the beginning, I was so overwhelmed by everything. The meds alone can make anyone's head spin. I started scheduling my days. That way I knew what was coming, and I noticed patterns that I adopted along the way. I found i could see the things that were important and the things that could handle my wonkiness and the things that couldn't weren't really worth my energy. I am two years post liver transplant and this is what works for me.
I completely agree! Life after transplant is not easy, and the side effects have a significant impact on day-to-day life. I feel like the brain fog wasn’t as noticeable at the beginning compared to what I experienced during dialysis. Now, nine years post-transplant, brain fog is an everyday challenge.
When I was training to be a dialysis tech, the tremor made it nearly impossible. I had to practice much more just to develop techniques to keep my hand steady, on top of taking medication to help manage the tremor.
I’m not sure if you’ve come across our app, TransplantLyfe365, but this is exactly why Lyfebulb developed it. It helps patients track medications, symptoms, and other metrics, allowing us to visualize correlations between medications and symptoms. It also makes it easier to print reports and show your doctor exactly what you’re dealing with. I’m a big fan of it and use it regularly for my appointments. I even did a webinar on it in February to showcase how it can support patients during and in between appointments. It’s free (available in the app store and google play), and maybe it can give you some additional ideas for your project!
By the way, it’s fantastic that you’re trying to create solutions! Thanks for sharing!
Transplant Patient
It does get easier, and I don't know if it ever stops being hard. Adjusting to my "new normal" of meds, side effects, scheduling and knowing what to watch for took a little while. I'm 5.5 years out now and there are still things that catch me by surprise, though not nearly as often. the mental/emotional side still takes work, but I've been lucky enough to create a pretty solid plan/care team by now that has my back when things go sideways.
My biggest tip is that you don't have to do it alone. Connect with people that get it. Join a support group (we offer some through transplantlyfe! you can find our entire schedule under the education tab at the top of your screen). Surround yourself with people who let you have your big feelings and can lift you up.